Cystic Fibrosis Resources Hub
We’ve compiled resources that support learning about living with cystic fibrosis. Search this Resources Hub by clicking on one of the categories or topics, or entering text in the search field.
Explore more: visit our News Hub, Blog Hub or Publications page. And stay tuned for our Mental Health Resource Hub coming early 2025.
Got non-urgent questions? Connect with our Helpline at 1-800-378-2233 during ET business hours or email [email protected].
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Canadian CFTR modulator therapy guidelines
Cystic Fibrosis affects 4,445 Canadians. These guidelines helps clinics manage CFTR modulator therapy, improving survival and quality of life for patients.
Food Intake Guide
Learn all the tips to keep a food intake guide to ensure optimal health when living with cystic fibrosis
Cystic fibrosis and summer care tips
Get ready for the summer sun by protecting yourself with a list of summer care tips for people living with cystic fibrosis
Your child and CF
Learn essential details about CF including the causes, symptoms, treatment options, and the critical role of a healthcare team.
When your parent has CF
Explore this activity book designed for parents with cystic fibrosis and their children, offering fun, engaging activities suitable for all ages.
Cleaning nebulizer and airway clearance equipment at home
Discover essential steps for cleaning and disinfecting nebulizers and airway clearance equipment at home to prevent infections.
Teen sexuality and CF
A comprehensive guide on teen sexuality with CF, addressing puberty timing, relationship advice, contraception, fertility, and personal care tips for a healthy and informed adolescence.
Travel tips for CF
Essential travel tips for those with cystic fibrosis, covering health management, medication storage, and documentation for a safe and enjoyable trip.
Parenting with CF guide
A resource to help you succeed while being a parent and living with cystic fibrosis.
School toolkit: a guide for parents and teachers
A resource for parents and teachers to support students with CF. Learn about CF’s impact on health and learning, classroom adjustments, infection control, and ways to create a safe, inclusive environment.
Transitioning from paediatric to adult CF care
A guide for a smooth transition from pediatric to adult care for individuals with CF including helpful checklists, preparation tips for appointments, and a tracking tool.
Cystic Fibrosis and Pregnancy
Join Dr. Cynthia Brown, Ronalee Robert, Emily Brennan, and Melissa Snowden in this webinar on cystic fibrosis and pregnancy. For personalized advice, we recommend consulting your CF clinic or medical professionals.
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