We’re changing the cystic fibrosis story.
Every member of our community has a powerful part to play in helping Canadians with cystic fibrosis live without limits.
Helping Canadians with CF live W/O Limits
We believe that no one who lives with cystic fibrosis should be left behind. As the national charity dedicated to improving the health and well-being of Canadians living with CF, we mobilize our community to address priority issues, advocate for improved access to medicine and resources, and fund targeted Canadian research that builds on our understanding of this rare disease to lessen its burden and, finally, find a cure.
How you can create change
There are lots of ways to support Canadians living with cystic fibrosis, and a little help goes a long way.
Donate to drive our life-changing work
Whether you chose to make a single or monthly donation, or arrange a planned gift, the simple act of giving creates positive, lasting change for the cystic fibrosis community.
Register for, host or support a fundraiser
There’s always something going on in our community – and you’re invited! Be our guest at a local or national event, or host your own fun fundraiser in support of Cystic Fibrosis Canada.
Volunteer to fit your schedule
We couldn’t have come as far as we have without our valued volunteers. There are as many reasons to volunteer with CF Canada as there are opportunities to do so.
CF Canada events are awesome!
Shinerama
Since 1964, Shinerama is Canada’s largest post-secondary fundraiser in support of Cystic Fibrosis Canada. Over 20,000 student volunteers from Canadian universities and colleges come together every year to make a difference in the lives of those battling cystic fibrosis (CF).
New to Cystic Fibrosis Canada?
Welcome! Our community is a vibrant and supportive place to be, whether you live with cystic fibrosis, support someone who does, or you want to help change the CF story.
My child has been diagnosed
A new cystic fibrosis diagnosis can bring uncertainty and fear but there’s hope. Canadians with CF are living longer than ever before. Find the information and support you need.
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I am an adult living with CF
The world of cystic fibrosis is changing all the time. We’ve compiled the latest information on treatment and care, research and advocacy to help you in your CF journey.
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I want to learn about genetic testing
In most Canadian provinces and territories genetic testing is covered if the test is ordered by a physician and testing is indicated.
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I am a researcher interested in CF
We’ve funded cystic fibrosis research and inspired research careers for six decades. We invite new CF researchers to review our work and opportunities for funding.
For Researchers
Stories from our community
We talk a lot about community because we are one. Which means there are people close by who know what you may be going through and who can support you. Just as you can do for others. BTW, every photo on this site is of a community member who has shared their story with us, for which we are grateful.
Creating a future W/O Limits
Lina Bhardwaj shares her daughter Rianna's journey with cystic fibrosis, highlighting the need for $40,000 by October 14 to fund critical research for new treatments.
Sep 25, 2024
This year, we’re dreaming bigger
Thanks to our community, people with CF are living a decade longer. Help us raise $40,000 by October 14 for groundbreaking research to transform lives.
Sep 18, 2024
Christina’s Summer at Cystic Fibrosis Canada
Christina Robert joined CF Canada as a 2024 summer student, contributing to impactful projects and gaining valuable insights into cystic fibrosis and advocacy work.
Sep 4, 2024
CF champion Mr. Saskatchewan turns 100
Frank Leier, or Mr. Saskatchewan, as he has been dubbed by Doug Summerhayes, the founder of what is now Cystic Fibrosis Canada, just turned 100!
Jun 8, 2024
A Story of Hope: A Tribute to Jean-Sébastien
Pier-Olivier Cabana, shares his story of Jean-Sébastien, a beacon of light in his life. He honours him this year at The Walk to Make Cystic Fibrosis History.
May 23, 2024Other ways to get involved
One of the great things about supporting the cystic fibrosis community is connecting with each other. CF is a rare disease that places a heavy burden on families, and any support makes an important difference. Here are a few ways you can help us move closer to our vision of living fully, beyond the limits of cystic fibrosis.
Become a CF Canada Corporate Partner
You’ll be in good company with our roster of excellent corporate partners who sponsor Cystic Fibrosis Canada events, donate goods and services, engage their staff in voluntarism and are generally awesome.
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Join Elevate to share personal insights
Our community input program for people affected by cystic fibrosis is an opportunity to share your perspectives, needs and experiences through surveys, focus groups and other initiatives to help inform our work.
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Advocate for real change
As your national leader in cystic fibrosis advocacy, we defend the interests of our community to help Canadians with CF access medicines and resources to live longer, healthier lives. You can take the lead to become an advocate and we’ll help!
Photo © Library of Parliament.
Get Involved
Tell your story
There isn't one singular story in our community but there are many shared experiences and feelings. Stories connect us in meaningful ways, and we all have one. If you want to share your CF story, we’ll provide guidance to help you tell it precisely the way you want.
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The latest news
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Looking for CF info and support? We’re here to help
The Cystic Fibrosis Canada Helpline answers your non-urgent questions about cystic fibrosis and connects you with vital community and government resources. Contact us by email at [email protected] or by phone at 1-800-378-2233 to speak with a member of our staff during business hours, Eastern Time.
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